HAVE YOUR SAY
We are very proud to say there are a lot of things that make Ragdolls UK unique as a charity. We are blessed with a team who are not only relentless in their pursuit of better understanding, treatment and care for girls with Turner’s Syndrome but are also wholeheartedly willing to give up their time to help others. As a charity this is never taken for granted. It is only with the Ragdolls UK team that the charity has been able to make such strides in a short time.
What also makes Ragdolls UK unique is the approach we take to the support and care that we can offer. Unlike any other charities, we open the floor to our members, their families, medical professionals and even the general public to offer them the chance to let us know where they think our efforts are best concentrated. It was a decision that was made on the founding of the charity and it is one we still stand firmly behind.
Please take the time to fill in a few brief questions. Are you or someone you know affected by Turner’s Syndrome? Then your answers can help us pin point the areas where help is needed most. Even if you aren’t and you have just stumbled upon this by sheer coincidence then still feel free to let us know. The few minutes can make a life changing difference to many.
CLICK HERE TO TAKE OUR SURVEY
WHAT WE DO
SUPPORT GROUPS
Ragdolls UK have one mission in mind and that is to help girls with Turner’s Syndrome achieve their full potential in whatever way we can. Over 80% of people who took our survey said that more support groups for TS girls and their families is where we should focus our efforts. Our message of hope has reached thousands across the UK but there is still much more work to be done.
A PLACE OF SUPPORT
What do Ragdolls UK feel is the need for support groups? What do they offer? First and foremost they are a place where girls with Turner’s Syndrome can meet others the same. It is also a place where the families and friends of those sufferers can share their experiences and help each other learn how to help their child, family member or friend live as full a life as possible.
Being diagnosed with a genetic disorder can be frightening. It leaves a lot of information to try and get your head round. The Ragdolls UK support groups mean that you can talk to people who are going through the same thing. They can offer you advice in a comforting environment away from the doctor’s office.
SOCIAL OPPORTUNITIES
Having a member of your family with a genetic disorder often inclines people towards wrapping them up in cotton wool. As caring and supportive a gesture as this can be it sometimes means that the sufferer gets very little opportunity to socialise with their peers. The Ragdolls UK support groups means being able to meet interesting, colourful and loving individuals from all walks of life. More often than not they make life long friends. The social nights and days out help with this.
RELAX
It can be overwhelming when a family member has a genetic disorder. Some mean that extra care is required and the carer can often forget to look after themselves. The Ragdolls UK support groups means that you can sit back, have a coffee and relax.
What is in a Support Group?
CONTACT US FOR MORE INFORMATION ON SUPPORT IN YOUR AREA.
AWARENESS CAMPAIGNS
We spread Issues affecting TS girls and their families far and wide.
Check out the work of De Montfort University researcher Kriss Fearnon. Working with TS girls as they face one of their toughest challenge.
Turner's Syndrome and Reproductive Decisions
Click HERE for more info or to take part in the research.
You can also read more about the research on our blog HERE
SUPPORT LINE
Our line is open for all those who wish to learn more about Turner's Syndrome. We are happy to chat to TS girls and women as well as friends and family affected. We are also open to any one who wants to learn a bit more about it.
If you would like to arrange a call back email us at: ragdolls.uk@gmail.com
